Annabelle’s Challenge is the leading charity for Vascular Ehlers-Danlos syndrome (Vascular EDS) in the UK.
Vascular EDS (VEDS) is a rare life-threatening connective tissue disorder that affects all tissues, arteries and internal organs making them extremely fragile. Patients are at daily risk of sudden arterial or organ rupture and it is thought to affect around 740 people in the UK.
At the heart of the charity is Annabelle who is the inspiration behind our challenge to provide eduction, research and support for patients and families affected by Vascular EDS. It was founded by Jared and Sarah Griffin shortly after their daughter Annabelle was diagnosed at the age of 3.
Within our local community Chislehurst; Mum on a Mission Bonnie Jackson is fighting to raise awareness of this extremely rare condition when her daughter was diagnosed in 2021 at 7 years old. Bonnie is a Trustee and London Regional Coorindator for Annabelle’s Challenge Vascular EDS Charity is is on a mission to raise funds in the challenge to find for a cure for this cruel disease.
